Recovery Days

6:49:00 PM Atticus Army 4 Comments

Hey army,

Sorry, we didn't post yesterday, everything is going pretty well.  Yesterday was uneventful for most of the day but the one big thing that did happen is that we had to say goodbye to our other kiddos for the next week.  We have been trying to get into the Ronald McDonald house here that is right next to the Hospital, that way we could still be together as a family.  Unfortunately, there is quite the waiting list for that and we are not sure how long it will take.   So we will start by having them stay with family in Spokane this week while we are awaiting results from his tumor, treatment plan and go from there.  It is really hard to have them away from us, and not be in our little family unit.  We will have to find some way to get them here with us if the McDonald house doesn't open soon.

Kezzie and Ryker saying bye to their little brother.

Today has been a pretty good day.  Atticus slept really well last night, Emmie and I did much better than other nights, but we nervously still woke up about every 2 hours or so thinking something was going to go wrong, or that he was going to wake up.  He didn't care either way and just had a great night, which we were very grateful for!  He definitely needed it.

So each morning the Doctors come around to each room and have what they call "rounds".  They go over the general background on us the patient, all current meds, reports from the nurse how the last 24 hours went, and then the plan for the day.  It is pretty nice as I get to sit in on them each morning, and if I have any questions or comments I get to chime in as my little heart desires.  This morning, however, we were going over blood levels, and post brain surgery they always put patients on anti-seizure medication preventively.  The medication that Atticus was getting has to be tested to obtain levels in the system to ensure they are at therapeutic level.  Atticus's this morning were VERY low, almost not there, so they determined that they needed to give a "bolus" or a lot at one time to get the levels up to make sure he wouldn't have any type of seizure.  So they went ahead and gave a loading dose of about 10X what he had been use to getting.  

Let me just tell you how LOOPY he was.  It was the funniest thing I have ever seen, at least a first.  After a bit his eyes started wobbling (nystagmus), he started grabbing at the air, and kinda rocking his head all around.  It is now 6:30 at night, and he is still feeling the effects of that medication.  I understand the reason for it, but Emmie and I felt so bad for the little guy all day.  His eye tracking or nystagmus got so bad at one point that he got nauseated and threw up.  Poor little guy, but in the end, it is much better than getting a seizure. 

The next exciting thing of the day is that we got to leave the ICU!!! Atticus had done soo amazing.  He is starting to do all his old mannerisms, saying his cute little words, and definitely has his feisty little attitude back.  He LOVES to tell the nurses NO as soon as they walk in.  He gets his little finger out points at them and says NO! 

So....... welcome to our new room!!

Getting ready to leave the PICU to our new room.

We even started to get our smiley boy back this evening!!!

Atticus was SO SO cute this evening.  He must have been feeling much better, he ate really well (at least for him) and started pointing at things asking what they were, was saying hi and bye to everyone that came in.  Loved the Balloons that he got from Grandma and Adam and Emilie George (THANKS), was laughing smiling all night.  Emmie has been able to hold him most of the afternoon and evening and she has just been in HEAVEN. 

Other than that not too much to report, we are just waiting on results of the Histopathology and then the Tumor board meeting tomorrow.  I have to drive back to Pullman (~5 hours) on Thursday, so we will be meeting with the Neuro-oncology team on Friday.  Hopefully by then we will have a rough idea of what our future will hold!